Saturday, November 29, 2008

From Mike: Update

Dawn has been diagnosed with a new liver disease, veno-occlusive disease (VOD). It's a condition where some of the small veins in the liver become blocked. The disease can spread to other organs. In transplant patients, it's usually caused by the high dose chemotherapy.

There is no FDA approved treatment for this disease but there is a clinical trial that began last week at MUSC for a drug called Defibrotide. This new drug has shown very promising results in other clinical trials.

Dawn has fluid around the lungs again making breathing painful and difficult. She's been in a lot of pain recently. Fluid retention is a side effect of VOD. Not much other information right now, hopefully we'll know more in the next few days.

8 Comments:

Toni Baker said...

Okay another hurdle to go over. One hurdle at a time... you can do it!!!! Just keep believing and feel the warmth and love coming your way to help you through...

Love you much!
Mike's Mom

Annie - Steven's mom said...

Hi Dawn and Mike
I think of you both so much and am hoping for some good and gentle days ahead for you!

May that Defibrotide do its job well and I hope you get to feeling much better really soon Dawn.

Love and light
Annie

Tara said...

I'll keep praying for you. This is one more hurdle in this leukemia fight. You got this far and i'm ABSOLUTELY sure you'll get past this too. I hope you pain subsides and that you go about getting better and going home.

_tara

Anonymous said...

All I can say is God must have some GREAT plans for you. The Bible says "the devil comes to steal, kill and destroy" and he has been working very hard but Jesus said "I have come to give you life and that more abundantly". Calll to Him for He has a great plan for you. Put on the whole armor and stand. He says "All things are possible if we only believe" I believe and thank Him for it now in the midst of your trial. Don't give up for we are praying for you. love you, Aunt Gloria from Houston, TX

Anonymous said...

We all continue to pray so hard for you and your family!!! We know these trials can be discouraging, but have faith that the Lord will lead you through!!! I know your mom has the hope and grace, which leads me to believe that you do as well! Take care and get some rest. We will continue to offer up daily prayers for you as well. Malena Valdeabella and Hoeger Family

Anonymous said...

Dawn,
I'm sending you healing thoughts and prayers. I added you to my home church's prayer list and they continue to pray for you and your family.

I hope you know that you are the bravest person I know. You are strong and capable.

Luv ya! Lauren

Matt said...

Dawn,

So sorry to hear about your pain. I hope the Defibrotide is effective. I think of you and Mike often and hope to see you both smiling again soon.

Matt

Gina P. said...

Sending "Best Wishes" your way. I am so sorry you are having to go through so much. Keep up the good fight...I am proud of both of you.

Love to both of you (Peas and Carrots)