We can start with the good news. Her blood counts are awesome. Her WBC is 3.44 (normal 4.8-10.8) and her neutrophils are 2.442 (normal 2.2-7.6). So you can see her neutrophils are in the low but normal range, excellent for day 23 post cord transplant. It appears that engraftment is confirmed but I haven't seen Dr. Costa yet to discuss this.
They've stopped dialysis. It was causing her calcium and alkaline levels to go out of normal. It has something to do with the way her current dialysis machine works. This machine is designed to run 24/7 and slowly pull fluid off. They're going to switch her to a more old fashion type machine that will run for 3 hours a day and pull fluid much quicker. Her creatinine is still a bit high at 1.8 (normal .4 - 1.0). What worries me most is her bilirubin. It's up again today to 7.2 (normal .2 - 1.3). We were seeing it trend downward last week and now it seems to be trending upwards again. Her 21 days are up on the defibrotide study drug but they're going to keep her on it. It's the only drug known to help the veno occlusive disease. It helps in about 45% of cases studied. Her swelling appears to be up again today. Her breathing appears to be stable, the machine is still doing most of the work. She's still very sedated. When they lower the sedation she appears very uncomfortable and agitated. I forgot to mention she also has a 102.7 fever. They're not yet sure of the cause.
Dawn started dialysis about 4:15pm. They're going to try and take 4 liters of fluid out. Today they've taken a bunch of cultures from her blood and saliva to try and figure out why she has a fever. It could be just a symptom of her counts coming back but they're not making any assumptions. She's a bit tender in the stomach area. They did an x-ray and have ordered an ultrasound to look at her liver and gall bladder.
"Wilson" the glove balloon
Thursday, December 18, 2008
Posted by Mike at 10:42 AM