Friday, December 19, 2008

From Mike: Day +24 (Day 18 in ICU)

Update: 11:45am
Dawn had an eventful night. She pulled the ventilator tube out of her mouth. Yesterday when she was alert she was very agitated. She was constantly trying to pull her ventilator tube and IV lines and kept trying to get out of bed. She's very frustrated and I think pretty confused too.

Her fever is 103.3. Bilirubin is still up at 7.3. Her white count (WBC) is up again, first time in the normal range: 5.960 (normal 4.8-10.8). I don't have
her absolute neutrophil count but it was about 51.5% of white cells which puts it about 3.07.

They did dialysis this morning. They took off over 5 liters of fluid, which is about 12 lbs. So between last night's 4 liters and today's 5, her swelling is down. When they pull this much fluid this rapidly they monitor her blood pressure to make sure it remains stable. If it drops they have to slow down or stop dialysis. Her pressure remained stable so she still has more fluid to give.

They're hoping to get her breathing on her own by Monday so they're going to continue to be aggressive about getting the fluid out and working her lungs. If she can't breathe on her own by then, they'll put the trachea tube in which would be a major setback to getting her off the ventilator, but will be more comfortable and allow her to get up and move about.

5 Comments:

Tara said...

Aww Dawn, I can't imagine how fustrating this all must be for you. Seeing how your WBC is improving, then all they have to do is rid you of this extra fluid. Just try and stay calm while the docs do their job to get you better and out of that hospital. I pray that these doctors make the best decisions possible to get you better. You are my hero. You've gone though hell, and you'll be back before you know it. Stay strong for all of us wimps out here, so we have someone to look up to when we have to go for medical treatment. Your the strongest girl I never had the pleasure of meeting personally.
Thanks for the update Mike.
-Tara

Anonymous said...

Dawn
After spending all the time you have in the hospital and these last 18 days in ICU, we can understand, somewhat, never being there, how you want to cast everything aside and just get up, but you have to follow the Doctors instructions. The medications could be causing some confusion so I hope they will be able to cut down on those. Your WBC are wonderful so the transplant must have done what it is supposed to do. It's easy to sit here and tell you to be patient, but I hope that Mike can calm some of your fears and agitations. Your fighting a good fight, and you are giving others hope in battles they are facing. Keep up the good fight.
Love
Grandpa Tony & Nancy

Anonymous said...

HI DAWN, YOU ARE SO AMAZING AND HAVE SO MUCH COURAGE THAT WE KNOW YOU ARE GOING TO GET THROUGH ALL THIS. PRAYERS ARE BEING ANSWERED EVERY DAY AND MINE IS THAT THIS FEVER CAN BE FIGURED OUT AND THE BREATHING PROBLEM WILL AS WELL SO YOU CAN GET BETTER FAST.THANKS MIKE FOR ALL YOU ARE DOING. WE REALLY APPRECIATE IT.. LOVING YOU SO MUCH...GRANDMA GREEN

Anonymous said...

Dawn - Hang in there little sister. Just a few more days and you can be rid of the vent. Try to relax and focus on the good result ahead of you. I'm sending nothing but good "mojo" your way.

Mike - I think about the both of you and check in here daily. Keep on keeping on my friend. As always if you need to hear a few bad jokes, I'm here for you.

-Tannis

bigD said...

Hi Mike,
I found your blog from reading Annie's Living With CML blog.
I am so sorry to hear all that Dawn is going through right now and my thoughts and prayers go out to both of you. My son (26 years old) was diagnosed with CML in May 2008. He was in blast crisis at the time of his diagnosis. He had a BMT in August of 2008. He had some rough times but nothing compared to what Dawn is going through right now. My heart goes out to you and Dawn. I am a nurse and VOD was one of my biggest worries (although how you pick just one worry with this horrible disease, I don't know) Keep supporting Dawn, be with her and help her fight. The love and support of her family is so important and crucial to her recovery. It will mean so much to her to know that you are by her side through it all, no matter how hard it gets! Keep fighting! Dawn is young and strong and the human body and spirit can do amazing things. I will keep you both in my prayers...I just wanted to let you know you were not alone. Take care of yourself too... as the caregiver, I know how hard it is to juggle even the most mundane tasks, like eating, sleeping, getting emotional support and even exercise. I am still trying to figure it all out. I have my own blog where I have vented, cried and tried to make sense of this thing that has changed my son's entire life. Take care Mike. I cannot even begin to imagine how you are dealing with all this happening to Dawn, especially on the timeline that you describe. So much to go through so fast and you don't even know what is coming until it hits you. I hope you have friends and family to support you, let them help where they can and take each day one moment at a time. That is all you can do.

“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.” ~Mary Anne Radmacher