Wednesday, December 17, 2008

From Mike: Day +22 (Day 16 in ICU)

How you can help:
1. Donate Blood: http://www.givelife.org/ for locations
2. Register to become a potential life saving bone marrow donor: http://www.marrow.org/

Update: 12:50pm
She's awake today, they reduced her ativan a bit to keep her more awake and alert. She was breathing on her own earlier this morning with pressure support. The dialysis seems to be going pretty good! You can see in the picture below how much fluid they got off from just this morning!


One of Dawn's many GREAT nurses holding fluid taken out just since this morning!

Here counts are still looking great! Her liver bilirubin has come down slightly to 5.8. I'm glad to see it stopped getting worse.
Even better:
WBC: 1.59
Hemoglobin: 9.0
Neutrophils: .922
So things are still looking good for engraftment. They've stopped a few antibiotics because her counts are looking good, no signs of fever or infection, and they're trying to reduce the number of meds (fluids) going into her. They're also going to stop the neupogen shots (G-CSF) for a few days. The neupogen shots stimulate the bone marrow to produce more blood cells so her counts may drop a bit because of this, we'll see. The neupogen may be contributing to the fluid retention so they're going to try and see if it gets any better and if her counts can continue upwards without the shots.

Update: 6:15pm
They just finished replacing her central line that goes into her neck. They put the line in yesterday to do the dialysis and apparently the end of the line was up against a vessel or something. They needed to push the line a bit further in but they can't just do that because the line that's exposed isn't sterile. So they had to replace the line completely. They actually have to move the line AGAIN! but this time they have to pull it out just slightly, which they can do using the existing line. She looks a bit more swollen today, even with all the dialysis, although she's been off the machine since about 2:30 in preparation for the line replacement. She's also running a fever, 101.8 right now. They're concerned about pneumonia so they just injected a bit of fluid into the lungs and pulled it out to get a sterile culture of what's inside. There is some good news in all of this, her counts continue to rise, rapidly. Her WBC is up to 1.89 and her neutrophils are up to 1.342. Even her hemoglobin is up to 10.4. Dr. Stuart said the rule of thumb for engraftment is 3 days with neutrophils > .500 so tomorrow morning should confirm this! I'm waiting on the Dr. to come in and reset her line and then she can get back on the dialysis machine. I can tell she's very frusterated and tired of all this.

8 Comments:

Anonymous said...

Thanks for the update Mike. Give Dawn our best wishes. That is a lot of fluid she got rid of this morning, this should help her breath better, right. Her counts are looking good.
Love
Grandpa Tony & Nancy

Maria G said...

its great that medications could be reduced & so good to see that shes improving!! thanks for all the updates :-)
lots of love,
maria

Chrissy Nelson said...

Dawn, I am so glad to hear you are getting better. Keep fighting, We'll keep praying, and you'll be 100% in no time!

Gina P. said...

Found out earlier that my company was having a blood drive. So I went over and gave a pint. Hope this helps out someone in need.

To the readers:
If your company does not support such efforts you may want to consider asking about starting these types of events. My company has sponsored blood donations for years and recently Bone Marrow registery drives. Maybe you can request your company or organization to become active in the community by offering such events.

Dawn and Mike:
Still keeping you guys in my thoughts and Best Wishes. I was thinking of you guys the whole time I was at the blood mobile. Keep on fighting and getting better.

Love you two bunches!!!

Tara said...

That is so great!!!! I can't beleive that uch fluid came out of such a small woman!! Keep up the good fight Dawn.

-Tara

Anonymous said...

Keep up the fight. With all Dawn is going through my prayer is that she doesn't have to go through any more. I pray she will have a great turn around and be able to get rid of all those tubes. I know the doctors are doing their best. Sheryl wanted me to tell you if they do the trach, it does help to get off the ventilator. Marissa, her daughter made a chart and put all the questions her Mom might want to ask. When in the first stages their is no sound comes out when you try to communicate so she would get so irritated when we couldn't read her lips. She could point to the question on the chart and eliminate the irritation. It was great. We keep praying and glad to see some improvement. Thanks for keeping us informed.

Anonymous said...

HI, DAWN, LOOKS LIKE TODAY WAS BETTER, WITH ALL THE FLUID GONE I AM SURE IT WILL KEEP GETTING BETTER. IT IS GREAT THAT YOU HAVE MIKE AND CRISTY TO SEE YOU THROUGH THIS. TAKE CARE, WE LOVE YOU VERY MUCH, PRAYERS ARE ANSWERED EVERY DAY.... GRANDMA GREEN

Anonymous said...

Dawn, I'm glad to see that you are doing better. I'll be by to see you this weekend.

No funny stories to report as of yet. but I'm working on findin gyou one.
Lauren